I received an email late one evening last week and the contents of it still continue to resonate. The email had come from a young girl who I’ll name Zoe for the purposes of this narrative. Zoe had contacted me because she had been looking into the work of Ragdolls UK. I set up Ragdolls in 2013 because as a sufferer or Turner’s Syndrome I felt it was important to help my TS sisters find the support they needed. The condition occurs in 1 in about 2500 females across the world but there are still so many who haven’t heard of it and when you are diagnosed with the unknown it can be terrifying. Zoe was one such young woman.
Diagnosed at sixteen, Zoe was told from a young age all the things she wouldn’t be able to do. In her email to me she stated that she ‘felt like a freak’ through school and felt like she wouldn’t be able to do any of the things ‘normal’ girls do. Then there’s that word that drives fear in many TS women – infertility.
She reached out to me and I was incredibly proud that she did so. As a woman who has never focused on what I can’t do and aimed for the stars I have always encouraged my TS sisters to value themselves and their contributions to society no matter what barriers health issues may throw up. Most importantly the work of Ragdolls UK is to encourage to achieve potential. My TS sisters are some of the most caring, loving, intelligent and delightfully creative women I’ve ever had the pleasure to meet.
There are challenges to face living with a condition like Turner’s Syndrome but that’s why we work together and support one another.
I am glad Zoe saw fit to tell me her story because if just one girl realises there is support out there for her it makes it all worth it.
A huge thanks to all who support Ragdolls UK. We are making a difference.
I count myself blessed in life. It is a pleasure to be able to do what I love most. With those blessings comes a responsibility. I believe it is my responsibility to play my part and support my TS sisters in achieving their full potential. When I was a little girl, heading into hospital for my second surgery I was terrified. My gran knitted me a rag doll to cheer me up and keep me company. So it was the charity Ragdolls UK was born from this same sense of comfort and support we are hoping to bring to as many TS girls and their families.
As a small charity Ragdolls UK has raised awareness and provided support groups across the UK but there is still much to be done. 2020 provided its challenges to say the least and 2021 is still going tough. However, it has made us more determined than ever to extend our reach, expand the support we can offer and do our part in assuring girls with TS receive the friendship and advice they need. With your help we can fight against the restrictions caused by COVID19 and be there for any and all who need us.
Despite occurring in 1 in about 2500 girls and women across the world there are still so many who have never heard of the condition. The doctor’s waiting room can be a terrifying place when you have been diagnosed. There are so many questions to ask. There may be so many things you are told you can’t or won’t be able to do. Ragdolls UK aims to be a friendly environment away from that where we look at what you can do because one thing I’ve learned over the years is that my TS sisters are some of the most resilient people there are.
So whilst I am blessed I have a responsibility. I can’t do much but I can certainly do my part and be there for the TS sisters and family members who need me.